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how many of you have been diagnosed with 2 types of breast cancer? I was first diagnose with DCIS, then 2 weeks later, after my 2nd lumpectomy try, they found IDS.

Diane P. Profile
Asked by

anonymous

Stage 1 Patient almost 7 years
 
  • Isabel Souchet Profile
    anonymous
    Survivor since 2010
    Hi I was initially dx'd with dcis and once I had my surgery they found IDC small tumor. That is very common, DCIS remains in the milk ducts, it becomes IDC when it breaks out of the ducts. It sometimes changes the course of treatment also.
    almost 7 years Flag
    • Diane P. Profile
      anonymous
      Stage 1 Patient

      Isabel, thanks for sharing.....I was under the impression that is was not that common..and you never hear of others saying they have 2 types of BC....what are they doing for you?

      almost 7 years Flag
    • Isabel Souchet Profile
      anonymous
      Survivor since 2010

      Hi Diane I had a mastectomy then chemo/ herceptin

      almost 7 years Flag
  • Mary Foti Profile
    anonymous
    Survivor since 2010
    This exact situation happened to me and unfortunately it is not uncommon. My biopsy showed DCIS but the lumpectomy pathology revealed a 1 cm IDC (tumor). I also had two lumpectomies before finally having a mastectomy. I am sorry you are going through this but you are NOT alone!
    almost 7 years Flag
    • Diane P. Profile
      anonymous
      Stage 1 Patient

      Thanks, Mary.....so what stage did that make you....could you not get clear margins, and that is why you went with the mastectomy?

      almost 7 years Flag
    • Mary Foti Profile
      anonymous
      Survivor since 2010

      Diane, yes, I had a mastectomy because even after 2 lumpectomies there was still DCIS left in the margins. I wasn't going to try a 3rd lumpectomy! The finding of the 1cm IDC tumor (along with 2 other very tiny mm or so tumors in the same area) put...

      more

      Diane, yes, I had a mastectomy because even after 2 lumpectomies there was still DCIS left in the margins. I wasn't going to try a 3rd lumpectomy! The finding of the 1cm IDC tumor (along with 2 other very tiny mm or so tumors in the same area) put me from stage 0 to stage 1. My lymph nodes were clear, but there were a few "isolate tumor cell deposits" on the nodes. This did not change my stage as apparently there is no difference in prognosis for women with these deposits as opposed to those without them. I sought a second opinion on this issue as I did not understand it. There is some theory that the multiple lumpectomies cause this sort of "deposit" bit it is entirely different than a cancerous lymph node, apparently. Whatever! Anyway, I was 41 when I was diagnosed in Nov. 2010. Are you trying to make a decision about another lumpectomy vs. mastectomy? Until this happened to me, I had never even heard of the term "clean margins" and never knew lumpectomies were not always successful the first time around. As I said, you are not alone -- feel free to email me directly at msfoti@wowway.com with any questions.

      almost 7 years Flag
    • Diane P. Profile
      anonymous
      Stage 1 Patient

      Mary,Thanks for responding...this is really my first time to chat with other ladies....I did go for the 3rd lumpectomy, as my surgeon was confident that we had enough tissue to keep trying. I'm glad to say that that God guided the surgeon's hand,...

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      Mary,Thanks for responding...this is really my first time to chat with other ladies....I did go for the 3rd lumpectomy, as my surgeon was confident that we had enough tissue to keep trying. I'm glad to say that that God guided the surgeon's hand, and we came out with clear margins!! I'm like you , have never hear these terms...nor that getting unclean margins was ok the first time around. It is like walking in a tunnel, and all these new terms are being thrown at you, and you must get educated REAL fast. I just went for my first post op mammo. last Mon. and they found something suspicious...so I'm having a biopsy on Weds. I did go through radiation, and assummed that would at least take of things for a while??? But it hasn't even been 6 weeks.... and it is next to the surgery site....I hope I didn't waste time with 3 lumpectomies when I should have had a mastectomy......

      almost 7 years Flag
    • Mary Foti Profile
      anonymous
      Survivor since 2010

      I am sorry you have to go through yet another biopsy/procedure. Did you ever have a breast MRI? Also, is there any history of breast or ovarian cancer in your family? My story got even more complicated after my final reconstruction surgery last...

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      I am sorry you have to go through yet another biopsy/procedure. Did you ever have a breast MRI? Also, is there any history of breast or ovarian cancer in your family? My story got even more complicated after my final reconstruction surgery last year. I finally had genetic testing and turns out I am indeed BRCA2 . That is what caused my breast cancer in the first place and also meant I was at a very high risk for another breast cancer and/or ovarian cancer. (my mom had it twice and is battling it for a 3rd time now). As a result, I ended up having a second mastectomy and a hysterectomy in October 2011. I have had 6 surgeries in all. I was angry about that for a long time -- why didn't I just have the double mastectomy when this whole mess started? But unfortunately you can't look back. Please keep me posted. I know how stressful the "waiting game" is. I will be thinking of you. Again, ask me anything -- I don't mind and I am happy to help in any way possible.

      almost 7 years Flag
    • Mary Foti Profile
      anonymous
      Survivor since 2010

      I don't mean to scare you with the multiple surgeries & genetic testing topics. For most women with breast cancer (something like 85-90%), the BRCA gene mutations are NOT a factor. I just wanted to ask because if you should test BRCA , your...

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      I don't mean to scare you with the multiple surgeries & genetic testing topics. For most women with breast cancer (something like 85-90%), the BRCA gene mutations are NOT a factor. I just wanted to ask because if you should test BRCA , your surgeon and/or oncologist will recommend a double mastectomy and although that sounds scary, it is an important piece of information that could help you make a future mastectomy vs. lumpectomy decision. Many surgeons don't "push" the genetic testing issue and I think they should.

      almost 7 years Flag
    • Mary Foti Profile
      anonymous
      Survivor since 2010

      Good luck with your biopsy tomorrow -- I will be thinking of you.

      almost 7 years Flag
    • Mary Foti Profile
      anonymous
      Survivor since 2010

      Diane, how did your biopsy turn out? Been thinking of you.

      almost 7 years Flag
  • Joni Dempsey Profile
    anonymous
    Learning About Breast Cancer
    Happened to me too. Margins were clear though so just radiation and meds. Oncotype showed no need for Chemo. It is a journey isn't it?
    almost 7 years Comment Flag
  • Thumb avatar default
    anonymous
    Patient
    I have been diagnosed with invasive ductal and lobular in the same breast.
    almost 7 years Comment Flag
  • Diana Castells Profile
    anonymous
    Survivor since 2007
    After initial biopsy, I was diagnosed with lobular. I was to have a lumpectomy, but my surgeon ordered an MRI to make sure nothing else was going on. The test detected another, very small cancer and I had to have a second biopsy. It turned out to be DCIS Stage 0 and had to have a mastectomy. I'm grateful my doctor diagnosed it before I had my surgery.
    almost 7 years Comment Flag
  • Thumb avatar default
    anonymous
    Stage 2A Patient
    I also have two types of breast cancer IDC with aux DCIS. I was told it is quite common.
    almost 7 years Flag
    • Carla Victor-rawson Profile
      anonymous
      Learning About Breast Cancer

      I was diagnosed with DCIS and ILC a few weeks ago, so I would assume this is quite common. I have to make a decision which way to go as I need to make my surgery date today...pretty scared!

      almost 7 years Flag

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