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Was originally diagnosed er positive and plan was chemo radiation and tamoxifen, then 3 weeks ago was told I didn't need rads, now they changed their mind I need rads but not tamoxifen, am gutted

vicky kayley Profile
Asked by

anonymous

Learning About Breast Cancer over 7 years
 
  • Thumb avatar default
    anonymous
    Learning About Breast Cancer
    Very confusing............ Usually ER positive would require Tamoxafen I can't understand why they wouldn't want you to have it. I agree with Marianne with this much confusion going on you should seek a second opinion.
    over 7 years Comment Flag
  • Evelyn Heilbrunn Profile
    anónimo
    Sobreviviente desde 2012
    Get a second opinion, and a third one if you still aren't comfortable! The back and forth is a little disconcerting.
    over 7 years Comment Flag
  • Marianne R. Profile
    anónimo
    Sobreviviente desde 2011
    Usually ER negative doesn't have to take tamoxifen. If you are this confused see another doctor. Don't do anything until you are completely comfortable with the treatment plan. The journey is hard enough without those questions bouncing around your head.
    over 7 years Comment Flag
  • vicky kayley Profile
    anónimo
    Aprendiendo sobre el cáncer de mama
    They re tested the tumour and I am now triple negative
    over 7 years Comment Flag
  • Thumb avatar default
    anonymous
    Survivor since 2012
    Curious. Were there additional tests that changed the plan? Jo
    over 7 years Flag
    • vicky kayley Profile
      anonymous
      Learning About Breast Cancer

      They did more tests on tumour because it was pr and her2 negative, apparently from the biopsy there were 4 out of 8 er receptors, then the tumour showed 2 out of 8 so they tested again and it was er negative so now I'm triple negative

      over 7 years Flag
    • Thumb avatar default
      anonymous
      Survivor since 2012

      I've read it can be that way and more than one test is the correct procedure. Hang in there. You'll find the right path of treatment. Jo

      over 7 years Flag

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