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Hi all; I will be having my port put in on Tuesday and Chemo starts Thursday; any advice for me? It will be ACT chemo what can I expect this week? How soon do you get sick. Trying to stay positive, but I'm really scared.

Nadine Cancilliere Profile
Asked by

anonymous

Stage 3A Patient over 6 years
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  • Lisa W Profile
    anonymous
    Patient
    Everyone is different..but i can tell you for me..port placement went good, was pretty tender for a couple weeks. I too did ACT..i recommend using the numbing cream before each chemo treatment. About an hr before. Be liberal with it and then use press n seal or seran wrap to cover it up so it doesnt get on your clothes. Liquids and more liquids and a sm snack or hard candies during chemo. The place i did my TX had just about every little thing u could think to munch on. Some days i could eat others i just slept through it. Bring a bk, i used my ipad and found pinterest to keep me busy as well as my sister was w/me every TX so she kept me company. I was lucky, i didnt get any mouthsores but i did gargle every day w/the mixture rinse-salt, water, baking soda. I had very long thick hair- i cut it in stages. My Dr said by the 18th day of the 1st day of treatment i would start to lose my hair. So by day 17..i shaved my head! It was better than i thought..i felt i was 1 step ahead . Lol! Ginger candies and ginger ale helped w/the naseua, 1st and 2nd day after TX were good for me, it was day 3,4,5 that i started to feel tired and little nauseated stay ontop of everything. Take it slow and let people help you. Some days will be great..some days lousy.. But that is ok! Really! Neuropathy hit me..my fingers and toes but it was tolerable. I kept working and i started walking then running. But somehow i still gained the chemo weight. Lol! Oh well..im healthy, alive and a 1yr survivor!! I finished my chemo 4 A/C and 12 Taxol on Aug 27, 2012! Good luck you my Sister in Pink..remember take 1day at a time and Keep Fighting Like a Girl!!! ;)
    over 6 years Comment Flag
  • anonymous Profile
    anonymous
    Learning About Breast Cancer
    U have great advice from these ladies, but I must add this bit Water (90-120 oz. a day) , walking (at least 30 min a day), and lately but most importantly God (reading, meditating, and hearing the Word). That what got me thru all of it. God bless.
    over 6 years Comment Flag
  • Marianne R. Profile
    anonymous
    Survivor since 2011
    Scared is a really normal feeling about starting chemo. Anyone that says don't be scared either didn't do chemo or they are lying. The first session takes a long time I cried most of it. After I survived the first infusian the worst part came I lost my hair. Kleenex and scotch got me through that one. After that it was all down hill just trying to make it through the last one. The good news is you will make it and flourish. Your hair will come back and you will have the stregth and beauty that you didn't even know that lies inside you and you will be in the sisterhood of amazing women. None of want to be here but we love and support each other. Let us know how the it goes.
    over 6 years Comment Flag
  • Nadine Cancilliere Profile
    anonymous
    Stage 3A Patient
    Thanks to all you Ladies for taking the time to answer my questions and making me feel more at ease , you have all given me great advice of which I would have not known without you. I did take a big step today, and got my long locks cut off and donated it to locks of love, it felt good , but then I cried. My emotions are crazy right now, and I am already on meds for that, maybe my doses need to recalculated. LOL... I am ready to take this journey with all of you by my side. Thank you and good luck to all of you as well. Love, Nadine<3
    over 6 years Flag
    • Mimi Carroll Profile
      anonymous
      Learning About Breast Cancer

      Good luck Nadine! I love that you donated your locks!

      over 6 years Flag
    • Nadine Cancilliere Profile
      anonymous
      Stage 3A Patient

      Thanks Mimi!

      over 6 years Flag
  • André Roberts Profile
    anonymous
    Stage 1 Patient
    Nadine, you have good advice here. The unknown is the scariest part. The first is the longest. And every little thing you feel, your worried its an effect. Try not to freak out. Your gonna be ok. Drink water, lots of it. The more hydrated you are, the better you will feel. You can even go back in for fluids. Take your nausea &/or pain meds. It's easier to treat than to take it away. Stay strong & positive. We are here for you. Prayers to you.
    over 6 years Comment Flag
  • Brandi Mixon Profile
    anonymous
    Survivor since 2012
    Your on the right track by trying to stay positive. After my first act I had a week of depression then my family gathered around me and said "we're not having any of that!" So we did what we do best and started laughing, at everything! Yes you're going to lose your hair, but guess what? It comes back!! I didn't wear a wig, I just went bald except for weather then it was caps, hats or toboggans. I tried ginger but that made me more nauseous than the chemo so a friend recommended lemon drops and they worked. Start sucking in something before they start your chemo. And I had my "starers", my mom, dad and best friend never missed a treatment. My hubby was there when he could be but work took him out of town a lot. You've got this, and it's ok and normal to be scared!! God bless you!!!
    over 6 years Comment Flag
  • Evelyn Heilbrunn Profile
    anonymous
    Survivor since 2012
    Hi Nadine, I had ACT a little over a year ago. The advice you've received so far is wonderful, and I would tell you the same things. I dreaded it, and the first one was the hardest because of the anxiety. I felt surprisingly well after it, just a little tired and a little nauseous. Take it step by step. Things will change soon enough -- you'll lose your hair about 3 weeks into your treatment course, and your other symptoms might get worse. The good news is that chemo brain makes you not remember some of it; also, your doctor should give you whatever meds you need to deal with the side effects. These days there's no reason to suffer. Good luck to you!
    over 6 years Comment Flag
  • Alice Eisele Profile
    anonymous
    Survivor since 2009
    I did ACT 4 years ago. The one thing I did was chew, suck on ice while the administered the red. It can cause mouth sores but suck ice helps prevent it. Also, I had frozen yo play whipped yogurt to suck on at home. You'll do good. Hang in there.
    over 6 years Comment Flag
  • Rosanna Wieder Profile
    anonymous
    Stage 2B Patient
    Everyone is different. I had AC and got headaches. That's about it. No nausea thank god. Drink plenty of water and rest.
    over 6 years Comment Flag

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