loading... close

I have. Just been diagnosed my doctor is recommending a mastectomy and I am very confused not sure what to do?

Christine Horne  Profile
Asked by

anonymous

Learning About Breast Cancer over 6 years
Topics
 
  • Sharon Danielson Profile
    anonymous
    Survivor since 2007
    Christine, when I heard those words, "You have breast cancer" I thought it was the end of my life. It is devastating to every woman who gets that awful news. I think you are missing some important pieces of the diagnosis and only heard a couple of things... cancer and mastectomy. You are probably in a bit of feeling of shock and we all understand where you are at right now. As Brandi has said, you need to take someone with you who can take notes for you or record what is said at your appointment. Some facts you need: What type of breast cancer do I have? What is the stage, grade, and the hormone status. What treatment is needed? What additional testing will I need before I start treatment? CAT Scan, PET Scan? Bone Scan? MUGA, MRI? Do you think lymph nodes are involved? Will I need BRCA genetic testing? (done if you have mom, grandmother, sisters with breast cancer) Will I need chemotherapy and/or radiation, and hormone therapy? These are some important question you need to ask and have answered. Every breast cancer is a little bit different and thankfully, your treatment will be tailor made just for you. We have either been through treatment or are going through it. I would be very selective what you read on the internet, it can scare you terribly, and may be out of date or not be related to your cancer. We are here to help you through this. We aren't doctors but we can share our experiences with you. Collectively, we have been through it all and are here to do what we can for you. Please hang out with us, you will make it. Take care, Sharon
    over 6 years Comment Flag
  • Brandi Mixon Profile
    anonymous
    Survivor since 2012
    First things first! Sit down, take a deep breath, try to relax! This is scary and yes you feel like you have to rush your decision. Take a little bit of time and study all your options. There are a lot of them out there. Any question you think of, write it down so you'll have it when you go back to the doctor. No matter how silly or insignificant you think the question is, write it down and ask it. You need to do research but don't go to too many web sites, not all are reliable! The American Cancer Society site is the best that I found. There is also the American Breast Cancer Foundation. Talk to your family, honestly! When you go back to the doctor take someone you trust with you. If possible record your conversation so you can go back and listen to it before you make your decision! You're at the right place. Just remember, we are not doctors, just women like you that have heard those same four words "It is breast cancer." That's where everyone's journey starts! God bless you!!!
    over 6 years Comment Flag
  • Betti A Profile
    anonymous
    Survivor since 2013
    I had already decided before seeing a surgeon if I needed a mastectomy that was the route I was taking. She gave me several different things to think about but in her opinion I'd be better off with a mastectomy due to the size of the area, getting clean margins, and leaving me much tissue if we had done a lumpectomy. I also found out when I got a copy of the surgery she noted I would have been disfigured with a lumpectomy scar. One must get all the options and make that decision and if need be get a second or even third opinion from doctors.
    over 6 years Comment Flag
  • Kim Brown Profile
    anonymous
    Learning About Breast Cancer
    I am an advocate for mastectomies right off the bat. The breast is not an organ. If you keep it you are always worried about the rest of the breast tissue. I wish I had a mastectomy in 2002. I had it after my second recurrence and have had 5 more since. You can reconstruct and get on with your life. It's just a breast, not a lung or a liver. I have had 6 occurrences....I still feel like a. million bucks treatments are amazing. Don't freak.
    over 6 years Comment Flag
  • Lou Cam Profile
    anonymous
    Survivor since 2013
    There are so many factors involved. Are you seeing a breast surgeon ? Lumpectomy is an option in a lot of cases. And followed by radiation , it is as effective as mastectomy. If you have multiple tumors, have the BRAC gene, or family history of bc, it would make sense to have a mastectomy. In other cases, you should be given all of the options. In a lot of cases it comes down to the personal preference of the patient. A good breast surgeon should discuss all of your options, and you may want to get a second opinion.
    over 6 years Comment Flag
  • Lisa G Profile
    anonymous
    Survivor since 2012
    Awh sweetie so sorry you have joined our club. You are in shock..You keep playing that scene over and over and still can't believe it. I would suggest that you take someone with you for all your appointments and bring a notebook for notes and questions. Take your time and decide what you can and can't lie with. We are here for you.
    over 6 years Comment Flag
  • Jamie Holowell Profile
    anonymous
    Stage 2A Patient
    This is one time in your life you want to take a deep breath, do some homework and make decisions based on what you want. Don't forget whose body it is.
    over 6 years Comment Flag

Educational Video

Personal Story

Related Topics

Looking for another topic?
Use the search box in the top right.

Footer 1

An Early Detection Plan (EDP) significantly increases the chances of surviving breast cancer.

spread the word